Diabetes Awareness Month…is a joke.

So November has been diabetes awareness month, and I have to say I haven’t done much posting about it. Why? Because I fucking hate it.

I don’t want to be a diabetic. I hate this disease. I hate being obsessed with food and with counting carbs and needles and all the complications of everyday diabetic life.

I don’t want to make people aware of my disease…I want my disease gone. I want it eradicated like polio and small pox. I want it destroyed.

The problem is, I don’t think there will be a cure in my lifetime. Why? Because insulin is the sixth most expensive liquid in the world. The fifth most expensive is Chanel perfume. If that doesn’t tell you the priorities of common man, then I don’t know what does. Big Pharma makes money off my plight, and I for one am sick and tired of being sick and tired.

There. That’s the awareness I’m spreading. That diabetes awareness only educates people more on how to care for diabetics…care for….not cure. While I appreciate people being aware that I have a disease that causes me to need special attention…what I really would appreciate is a cure and making people aware of how much that probably isn’t going to happen.

Still I hope for it in my lifetime. Not for my sake, but the sake of so many others like me.

End rant.

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I Voted

“My husband told me he doesn’t want me to get a job because we’ll lose our state health insurance.”

She poured out the sorrowful story I had once known all too well. People having to work a broken system to stay alive. In her case it was behavioral medications she and her family needed, with several members on the spectrum, and herself with severe mood disorders. All of them with suicidal tendencies, and the youngest of them 9 years-old.

It’s days like that that I feel so deeply we should have socialized healthcare, being chronically ill myself and knowing so many others who also are in situations like his, where woman can’t contribute to her own home an society by remaining unemployed to keep their public healthcare. It just breaks my heart.

I wouldn’t mind helping others stay alive and healthy given the opportunity. I pay for sidewalks I’ve never walked on, and parks I’ve never visited with my tax dollars, how much more important is the person who HAS walked on those sidewalks and visited those parks, clearly we give enough to help them enjoy those perks of our tax dollars, so why not help keep them alive and healthy?

It’s all I could think of when I voted yesterday.

While some have reason why they’d rather not have socialized healthcare, my heart only broke as I recalled listening to my friend talk on her situation. I too know that fear. I too hated the idea of having to abuse a system to stay medicated and alive with insulin costs only on the rise. I too was tired of paying high copays and deductibles, having more than half my paycheck going to keep me alive and very little else. I recall giving up food, internet, showers, and heat at different points in my life as I lived alone, just to make sure I could get my insulin. How much better would it have been if I could get more help and have reasonable payments on insulin? That would be nice.

Alas, while only time will tell, there is so much resistance to fight.

Therapy

“My first therapy appointment is Nov. 6th.”

“I’m so proud of you!”

I was too. I was so proud of her for finally taking a step towards dealing with her issues and setting goals. It was about time she started seeking more professional help in her situations, instead of coming to me for advice all the time.

My thoughts turned to myself then, and wondering why I don’t just buck up and go? I’ve been wanting to for a long time, and since getting married and navigating my relationship, I began feeling the depression worsen slightly, but not enough to alarm me.

Overall, my real issue is I’m too depressed to go.

Building another professional relationship with a therapist feels overwhelming. Becoming a better person takes a lot of time and investment, and I’ve invested a lot of my time in other things, like my friendships, hobbies, and work. You know, those things every human needs to survive and feel functional.

Most days I hardly feel functional at all, but that doesn’t mean I don’t look it.

I find any free time I do have is spent wishing for other things. I used to be such a content person, but since getting married I find I spend more time wishing things in my life could be different. Wishing that I had better things, prettier things, better health, better home, better everything. I’ve spent most days having the “I wants” instead of focusing on the “I needs” in my life. Really, I’d rather put my money to retailer than to my own health, because I’m sick and tired of feeling sick and tired, and the fewer specialists I have to see, the better. I’d rather have my money go to things I want instead of my needs. Thus, I retail therapy. A lot.

I feel terribly guilty after making purchases though, which makes me wonder why I enjoy buying things so much. Heaven knows how it got his way. The things I buy don’t make me a better person. They don’t make me feel better. They don’t really do much for me when it comes to self gratification.

Still the cycle continues, and I wonder why I don’t just do the right thing and go to therapy?

Because, I guess I really don’t want to.

Beach Bummer

My husband didn’t come on this Sunday evening car ride. He had to work. So when my parents stopped in, I felt free to accompany them to the beach to just sit and watch the water move.

“We need you to come up with some different words.”

“Why?”

“Because you always resort to saying, I’m good, just tired.”

Because I’m always fucking tired, mom. I thought as loudly as I could in her general direction. But then I finally blurted out:

“Well would you rather me tell people the truth when they ask me how I’m doing? Would you like me to tell them that the existential crisis is crushing me and my depression is exhausting?”

She said nothing. Her most direct way of mentioning her discomfort was silence. I was used to it by now. So I leaned back in the seat as the breeze met my lips and kissed them and my breath mingled with the summer air. I pretended that my breath alone was the reason the air was becoming more humid. That summer came directly from my mouth. I mouthed the word summer, just to feel a sense of power over nature.

My eyes closed, all I heard were the seagulls on the water honking their loud songs, and my mother shifting in the front passenger seat. Dad was outside the car, talking to an acquaintance of his, who had greeted us only moments before, and to whom I responded when I was asked how I was doing with I’m fine, just tired. Like I did with everyone, including my mother and father.

I had no motivation to get out of the car, neither did my mother. So my father ventured alone into the waves after wishing said acquaintance farewell. As I watched him walk further into the lake, I wondered how long it would take me to drowned if I went out to far and quit trying to swim. I wondered if I would be able to quit swimming if I tried hard enough, or if instinct and discomfort would save me.

On days like this…it felt as if nothing could save me.

Not Ready for Monday

A week long struggle with depression and stress at work ended with a coworker being fired Friday mid shift. Stunned by the sudden unexpected event and at least two weeks behind on just about everything, my coworker and I (the only two in for that day after other coworker was fired) ended up having to just call it a day. Both of us had plans afterward and the former coworker was supposed to be the one to stay late. Not that we planned on getting any work done if we stayed because with the shock we just had no idea what to do with ourselves.

Since leaving work Friday afternoon when my shift was over, I’ve had nothing but anxiety about the whole situation. Another coworker of ours has been gone because his father-in-law passed away. His two weeks of absence has probably been stressful enough , and now coming back to work, he’s going to be met with a workload a mile high and a coworker no longer with us that has been there since the beginning with him. None of this is going to go over well with him. He’s moody enough having not had losses in his life. I have a feeling this week is not going to be his week, and I’m afraid of the backlash me and my other coworker will be met with when he finds out.

So this weekend has been tainted with my anxiety in every moment. At the State Fair with friends, I had little to nothing to say, because my heart kept dropping every time I considered how quickly Monday morning was coming. In church this morning I found comfort in the sermon, about how God is with us in everything like he was with Esther, but still my anxiety was so high I couldn’t help but know the impending doom is coming. Yes, God is with us in all things, but that doesn’t mean it’s all easy, it just means God is there to show you what is next if you trust and obey, and for me…what was next is emotionally preparing for things to go badly, because it’s always better to assume that it will go badly, and to hope that there was some kind of pleasant surprise if it doesn’t.

After church I cleaned the whole house, made dinner (even though my husband is not home for dinner because he works the closing shift), and I called my mother to see how she was and try to get outside my own head, but even after all that….I feel so unprepared for Monday morning. I don’t want it to come, and at the same time I want it to have already been so I can say it was gotten over with and I survived it.

Sage Leaves and Dirt

When was the last time my feet had touched the ground? Like, the real ground? Dirt? It had been two weeks at least. Maybe three. So I wandered out to the garden, barefooted and spirit trapped within its own internal war, but he moment my feet hit the grass I felt all that stress and anxiety release. There was sage for picking in the garden. I would start there.

I did not start at the sage, but rather in a desperate moment of anxiety I laid on the grass and stared at the sky for a while. Why? Because I wanted to be reminded that I was so small in so vast of a world. That problems of mine were just as fleeting as my own life, and would soon drift away as time passed. That feelings were just feelings, no matter how strong they are, and that they too could fail me just as my own body could.

I needed to be reminded that I was finite. That a hundred years from now it is unlikely that I will continue to exists in the physical world, and all my emotions and problems would too.

I found comfort in this. As I laid on the ground staring into the sky, watching the clouds change from gold, to pink and purple hues, I found comfort in knowing the sun would also set on my stress, my sorrows, my anxieties, and my whole life. Maybe not today, but one day. I let that comfort wrap around me as the sky deepened in its blue.

I picked my sage and smelled it as I walked back to the stone steps of my tiny porch. Putting a soft leaf in my mouth to chew, I took my last deep breath of fresh air before entering and closing the door. Who knew I could feel so much better with just sage leaves and dirt?

Hospitals

I never really enjoy going around them, even if it’s for minor checkups. There’s just too many things wrong with them. Waiting room seating is uncomfortable. The furniture and floors everywhere are ugly. The television programs are really boring. The smell. The atmosphere. Everything about them seems to be uncomfortable.

The people are usually pretty friendly, as well as the coffee, which is not terrible as some might tell you…at least at our hospital. Because so many people rely on that coffee for so many things.

This time around it’s not an appointment for myself that I’m sitting in a hospital for. My mom needed someone to drive her. She’s getting an MRI for what she thinks might be another bulging disc in her neck, but of course you never know unless you get heavily sedated and shoved in a tube. She hates that part. I’ve never had an MRI before but I can’t imagine they’re very comfortable. Especially if you’re as claustrophobic as my mother is.

Recently a coworker of mine had their father-in-law pass away in this hospital. Which makes being here a little eerie. While I know hospitals that are associated with life and wellness, there is always that little shadowed part of the hospital for people who will not be getting better, and probably will not leave…and being so close to my late sisters birthday and the anniversary of her death, as well as the death of said coworker loved one…that shadow feels like it whispers a little louder than usual.

My coworkers father-in-law was not an old man. He’s younger than my own mother and about the same age as my father. Which puts life a little more in perspective and gives me somber and realistic realizations of the kind of deterioration I can expect for them in the years to come. Time that is flying so quickly it seems.

Sobering thoughts.

Earthing

It’s like everything runs into the earth when I lay on it. All the worry. All the pain. All the anxiety. Just laying in the grass, with the sunshine warming my skin and hearing the life happen around me. The breeze caresses my face and plays with my hair. It’s the most calm I have felt all week.

My husband and I are trying “Earthing” or “Grounding” as it is also known as. A friend of mine had mentioned it to me as something that assisted with cysts she had in her uterus and was desperate to keep this particular child after having miscarried 5 others before. She tried it for the entire first trimester, every night all night while she slept. Her cysts reduced in size as much as 60% according to her doctor. I figured even if my issues were not the same as hers, I would give it a try too.

I started by walking around in my yard with my shoes off more frequently, and while I did feel really great, I didn’t want to attribute that completely to the Earthing, since I can be a bit of a skeptic. It could have been the sunshine and increase in Vitamin D. It could have been the movement since I was so used to an office job. Still I noticed that chronic swelling in my hands seemed to experience relief when I would go outside, and I would notice the swelling to return when I got inside or stood on the sidewalk. So I started looking into Earthing methods a little more.

My husband and I watched several documentaries and TED Talks about the nutrients of the ground, the electromagnetic fields of the earth, and the bodily responses to natural stimuli and phenomenon. Not all of them were necessarily related to one another, but all of them were worth researching and helped us figure out a bit of the claimed science behind Earthing. My research was more based on understanding the medical uses of earthing for physical illness, because to be completely honest, I do not find myself buying into the metaphysical sort of stuff that everyone seems to lean towards in these scenarios.

After I was satisfied with the findings, I figured it couldn’t hurt us to try, so I found an inexpensive indoor earthing kit and figured if it didn’t seem to improve anything or feel like it was helping, I could probably get my money back by selling it on eBay or something. So the day it arrived we went to bed with it. Here are the things we noticed:

1) My husband who has snored every night since we got married, stopped snoring and does not snore every night he uses his earthing band.

2) I woke up with blood sugars in normal range for the first time in years and continue to do so since using the earthing band.

3) My husband has noticed an improvement in mood.

4) Chronic swelling in my hands is gone and has not returned.

5) I’m not waking up as tired.

6) I’m not sleeping as lightly.

7) I’m less depressed and more motivated.

I suppose that all of this could just be a placebo affect, but it could be real too. All I know is I’m doing and feeling better. Even my husband has noticed his mood and anxiety improve. So we’re starting to take it a little more seriously now and are starting to tell our friends and family about it. All in all, I hope to see more results as time goes on.

A Really Bad Dr. Visit

“So, I noticed you’re getting fat…”

Really? You couldn’t have said it nicer? You’re a medical physician. A specialist. Yes, I’ve gained weight, but seriously, 150 lbs is not that bad a weight for someone 5’4″ much less a diabetic who has only been skinny because of bad blood sugars for so long. I finally get healthy. I finally get on track. I finally have lower blood sugars and am eating right. Exercising for 30 min to an hour every day, and for what? You to sit in your white coat and crudely call me fat.

This is like, my worst nightmare and it happened only last week when I went to the doctor. I had gotten my blood sugars down for the first time in ages, and finally was food logging, exercising, and doing all kinds of stuff that I ought to be doing…only to have it once again not be enough. When we got home from my appointment I cried to my husband. I made false promises and threats never to eat again (I love food so we all knew it was a lie), and I walked, oh did I walk that night. An angry four mile walk where with every step I cussed out my doctor in my own head. Furiously. Violently.

I had worked so hard to get better, only to get the mixed message that I had gotten worse.

Insulin is not a cure to diabetes. Insulin, at least the more you take it, makes you fat. The fatter you get….the more insulin resistance you build, which means over time your body may not react to insulin anymore if you take too much. The fatter you get the more diabetic complications you can have too…all caused by taking insulin, the very hormone that is supposed to save your life.

Then they tell you, if the high blood sugars don’t kill your organs, being overweight will. So either way you lose.

Oh yeah, eat healthy and exercise right? That’s the cure! So many people talk about diet and exercise like it’s such an easy fix, but really the food industry makes even healthy living hard.

Insulin is like slapping a bandaid on the real problems. Like how healthy and low carb food costs so much money. How medical companies are afraid of us getting better because a healthy nation means they don’t make money. How most foods in the grocery store at all ever, are practically indigestible for the human body, have little to no nutritional value, and causes people to gain weight with high sugar, carb, and cholesterol content. The lack of fiber and protein content. Oh and don’t get me started on artificial sweaters (which also cause weight gain, cancer, and plenty of other issues). All things that cause so many health issues and weight problems in the US, and no one does anything about them.

I eat as low carb as I can in this kind of environment, increasing my proteins and vegetable intake considerably, and even use meal replacement protein shakes with less than a gram of carbohydrates in them (they taste like slightly sweetened chalk water with a touch of sadness, but I still drink them). Last week I managed to get to the store and get myself organic lettuce, organic peanut butter, organic frozen fruit (3 kinds), vanilla yoghurt, strawberry yoghurt, organic chicken breasts, and 5 varieties of organic and nonorganic fruit. It cost me just shy of $100. For so few items. Most of which were on sale. Then I made my husband Jumbalya, and couldn’t eat any of it….the struggle was so real.

Exercise then. Am I right? Surely that’s the cure!

I’ve exercised for 30 min to an hour every night for the last several months. No less than 30 min daily. Either a walk, a bike ride on my recumbent in the basement or outdoors, and playing Racquet Ball once a week for an hour every week with my coworker. Like, really high impact.

So what is a girl to do? How do I get healthy and lose weight as a type one diabetic? I’m considering eating some kind of parasitic worm at this point because I just freaking give up!

Age Spot

At first I had thought it was a smudge of something on my hand, but upon several attempts to wash it off and a moment of staring stupidly at its resilience, I realized what it really was.

It was an age spot. My very first age spot.

It’s a very faint light brown color, just like my mothers had started, and of course on the very same hand, just like her mother before her. I recalled when I first noticed my mothers hands changing and I recalled how my grandmothers hands changed too from my mothers account. Now it’s my turn and I’ve got it where they all seemed to have theirs start. Dead center on my left hand…only a faint shade of discoloration and half the size of a dime. Kinda shaped like the silhouette of that famous image of the Lochness monster.

It’s strange to think about getting age spots, since I’m only 27. Still, it isn’t a surprise either. I’ve been fortunate enough to have clear skin, few breakouts, and decent coloration most of my life and I’m sure it has run its course by now. My health isn’t all it could be. Diabetes is no laughing matter and has a habit of taking its toll on skin. It was only a matter of time before they would form. My grandmother’s started around the time she turned 35. My mother in her 30s. Both of them started out this way, on this hand, in a very faint shade of brown. My grandmothers had turned very dark blackish brown when she turned 60 which sent her to consult a physician only to find out it was nothing more than an ugly colored age spot. My mothers darkened, but not unattractively, when she turned 55 and has not changed much since. I only hope to be so lucky.

The reality of growing old strikes unexpectedly, and as I look in the mirror I find I haven’t really noticed my aging ever, and other than this age spot, I still don’t. I still have a very childlike round face and big eyes. My skin is still fair. My hair is still curly as ever and still it’s same color. Not much feels like it has changed, and yet emotionally I’m reminded that I am so much older than I once was. I know so much more. I’ve experienced so much more. I have witnessed so much more.

And there is still so much more to do.